Data / Research funding / Usher Syndrome
Usher Syndrome: 45 NIH awards ($46.4M) to 29 organizations
45 NIH awards ($46.4M) in the NIH spending category Usher Syndrome, to 29 organizations, read 2026-11-03. NIH fiscal years 2021 to 2025.
SpecStream is the live web data engine for teams and agents. It reads the NIH and NSF award files each time the agencies update them, and this page is that reading, joined to the open federal funding opportunities on Grants.gov. Ask for the awards you track by topic, organization or state and new awards arrive in your sheet, CRM, Slack or agent as the agencies publish them.
- Topic
- NIH spending category
Awards
45 awards in the window.
| Award | Agency | Institute or division | Fiscal year | Amount in window | Start | End | Principal investigator | Source |
|---|---|---|---|---|---|---|---|---|
| Engineering multi-lineage inner ear organoids | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $3,010,274 | December 1, 2018 | June 30, 2025 | KOEHLER, KARL RUSSELL | reporter.nih.gov |
| Intracellular Calcium in Hair Cells | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $2,777,983 | January 1, 1992 | February 28, 2029 | FETTIPLACE, ROBERT | reporter.nih.gov |
| Development of Gene Therapy for Hereditary Deafness using Rational Protein Engineering | NIH | National Institute on Deafness and Other Communication Disorders | 2022 to 2025 | $2,600,046 | June 17, 2022 | May 31, 2027 | INDZHYKULIAN, ARTUR | reporter.nih.gov |
| Usher Proteins in the Inner ear Structure and Function | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $2,508,459 | December 1, 2012 | November 30, 2028 | AHMED, ZUBAIR M. | reporter.nih.gov |
| CRISPR/Cas9-based gene editing approaches for the treatment of USH2A-associated diseases | NIH | National Eye Institute | 2022 to 2025 | $2,373,472 | June 1, 2022 | May 31, 2027 | LIU, QIN | reporter.nih.gov |
| Nonhuman Primate Model of Inherited Photoreceptor Degeneration | NIH | National Eye Institute | 2023 to 2025 | $2,341,778 | September 30, 2023 | March 31, 2027 | MCGILL, TREVOR JACKSON | reporter.nih.gov |
| GIPC3, multifunctional myosin adaptor in mammalian auditory hair cells | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2024 | $2,228,730 | June 10, 2020 | May 31, 2026 | FROLENKOV, GREGORY I | reporter.nih.gov |
| Hair Bundle Proteins | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $2,155,174 | July 1, 1994 | June 30, 2029 | BARR-GILLESPIE, PETER GORDON | reporter.nih.gov |
| Development of CRISPR/Cas9-based exon-skipping strategies for the treatment of USH-associated deafness | NIH | National Institute on Deafness and Other Communication Disorders | 2022 to 2024 | $2,113,099 | August 22, 2022 | June 30, 2027 | LIU, XUE Z | reporter.nih.gov |
| CLARIN 1 RETINAL FUNCTION AND THERAPEUTIC IMPLICATIONS FOR USH3 | NIH | National Eye Institute | 2023 to 2025 | $2,087,697 | September 1, 2016 | June 30, 2027 | DINCULESCU, ASTRA | reporter.nih.gov |
| Vestibular dysfunction and the development of therapies for Usher syndrome | NIH | National Institute on Deafness and Other Communication Disorders | 2023 to 2025 | $1,938,657 | January 1, 2023 | December 31, 2027 | LENTZ, JENNIFER JEAN | reporter.nih.gov |
| Significance of Myo7a isoforms in hair cell function | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2024 | $1,901,197 | September 1, 2020 | August 31, 2025 | SHIN, JUNG-BUM | reporter.nih.gov |
| Molecular Mechanisms of Clarin-1 and Clarin-2 function in mechanosensory hair cells | NIH | National Institute on Deafness and Other Communication Disorders | 2024 to 2025 | $1,401,716 | August 7, 2024 | April 30, 2029 | MUELLER, ULRICH | reporter.nih.gov |
| Photoreceptor Disk Formation and Retinal Degenerations | NIH | National Eye Institute | 2021 to 2023 | $1,337,444 | September 1, 2020 | May 31, 2025 | GROSS, ALECIA K | reporter.nih.gov |
| Disease mechanism of Usher syndrome 2 | NIH | National Eye Institute | 2023 to 2025 | $1,337,060 | September 1, 2023 | July 31, 2027 | YANG, JUN | reporter.nih.gov |
| Integrative Structural and Functional Characterization of Tip-Link Cadherins Deafness | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2022 | $1,295,330 | March 15, 2018 | February 29, 2024 | SHAPIRO, LAWRENCE S | reporter.nih.gov |
| Admin Supplement: Non-viral gene delivery platforms for the treatment of Usher Syndrome Type 2A | NIH | National Eye Institute | 2023 to 2025 | $1,281,705 | January 1, 2023 | December 31, 2026 | NAASH, MUNA I. | reporter.nih.gov |
| Molecular Determinants of Usher Syndrome Disorder in Humans | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2022 | $1,054,486 | May 15, 2018 | April 30, 2026 | AHMED, ZUBAIR M. | reporter.nih.gov |
| Antisense therapy for the treatment of visual loss in Usher syndrome | NIH | National Eye Institute | 2021 to 2023 | $1,016,887 | September 1, 2019 | June 30, 2025 | LENTZ, JENNIFER JEAN | reporter.nih.gov |
| Identification and characterization of novel functions for the Usher proteins in the inner ear | NIH | National Institute on Deafness and Other Communication Disorders | 2023 to 2024 | $1,011,163 | May 1, 2023 | April 30, 2025 | ZALLOCCHI, MARISA L. | reporter.nih.gov |
| Determining the roles of Ca2+-binding proteins in modulation of hair cell mechanotransduction | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2023 | $981,574 | March 1, 2018 | June 30, 2025 | WU, ZIZHEN | reporter.nih.gov |
| Gene Therapy for Hearing and Balance Disorders | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2022 | $846,072 | August 1, 2018 | July 31, 2023 | COREY, DAVID P | reporter.nih.gov |
| Nanomechanics of inner-ear hair-cell transduction | NIH | National Institute on Deafness and Other Communication Disorders | 2022 to 2023 | $757,715 | April 1, 2016 | December 31, 2023 | SOTOMAYOR, MARCOS | reporter.nih.gov |
| Nanomechanics of inner-ear hair-cell transduction | NIH | National Institute on Deafness and Other Communication Disorders | 2024 to 2025 | $730,272 | July 22, 2024 | June 30, 2027 | SOTOMAYOR, MARCOS | reporter.nih.gov |
| The role of non-coding variants in Usher disease | NIH | National Eye Institute | 2023 to 2025 | $690,831 | April 1, 2023 | March 31, 2028 | MUSTAFI, DEBARSHI | reporter.nih.gov |
| The role of centriole linkage in retinal degeneration and hearing loss | NIH | National Eye Institute | 2025 | $462,430 | March 1, 2025 | February 28, 2030 | YANG, JUN | reporter.nih.gov |
| Significance of Usher Protein Dynamics in Hair Cell Function and Deafness | NIH | National Institute on Deafness and Other Communication Disorders | 2025 | $449,241 | December 1, 2024 | November 30, 2029 | LIU, RONG | reporter.nih.gov |
| Generation of a new model for Usher syndrome. | NIH | National Eye Institute | 2024 to 2025 | $448,250 | February 1, 2024 | January 31, 2027 | HU, HUAIYU | reporter.nih.gov |
| Generation and Characterization of Novel Large Animal Models of Usher Syndrome Type 3 | NIH | National Eye Institute | 2022 to 2023 | $436,237 | September 30, 2022 | August 31, 2024 | DINCULESCU, ASTRA | reporter.nih.gov |
| AUDITORY NEURAL FUNCTION IN IMPLANTED PATIENTS WITH USHER SYNDROME | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2022 | $432,656 | April 1, 2021 | March 31, 2025 | HE, SHUMAN | reporter.nih.gov |
| A multi-species approach to find regulators of deafness genes | NIH | National Institute on Deafness and Other Communication Disorders | 2021 | $423,826 | December 1, 2016 | November 30, 2022 | GROVES, ANDREW K | reporter.nih.gov |
| Development of an Usher Gene Therapy | NIH | National Eye Institute | 2021 to 2022 | $337,479 | March 1, 2021 | February 28, 2023 | STAERZ, UWE D | reporter.nih.gov |
| Genome Editing Therapy for Usher Syndrome Type 3 | NIH | National Eye Institute | 2023 | $289,895 | September 1, 2023 | August 31, 2025 | YANG, DONGSHAN | reporter.nih.gov |
| Protocadherin 15 as a critical component of the gating spring of human hearing | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2024 | $201,224 | September 1, 2021 | May 15, 2025 | VILLASANTE, CAMILA MARIE | reporter.nih.gov |
| Exploring the relationship of water flow across the RPE and mutant-MYO7A/Usher 1B | NIH | National Eye Institute | 2021 | $189,150 | January 1, 2020 | December 31, 2023 | WILLIAMS, DAVID S | reporter.nih.gov |
| Understanding the functions of USH2A and ADGRV1 in photoreceptors by identifying their interacting proteins | NIH | National Eye Institute | 2021 | $184,906 | February 1, 2020 | November 30, 2022 | YANG, JUN | reporter.nih.gov |
| Mechanisms of Tip Link Tensioning in Mammalian Auditory Hair Cells | NIH | National Institute on Deafness and Other Communication Disorders | 2022 to 2025 | $169,214 | July 31, 2022 | July 30, 2026 | DRAGICH, ABIGAIL | reporter.nih.gov |
| Binding of PCDH15 to TMC1 for Mechanosensation in the Inner Ear | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2022 | $133,576 | April 1, 2020 | March 31, 2023 | PHILLIPS, CHARLES BROWN | reporter.nih.gov |
| Defining the role of MET components in vestibular hair cell maturation and gene therapy responsiveness | NIH | National Institute on Deafness and Other Communication Disorders | 2025 | $132,705 | December 17, 2024 | November 30, 2026 | RATZAN, EVAN | reporter.nih.gov |
| Novel inner ear organoid models for studying hair cells in normal development and in the deaf-blindness disease Usher Syndrome Type 1F | NIH | National Institute on Deafness and Other Communication Disorders | 2024 to 2025 | $74,402 | September 1, 2024 | August 31, 2026 | NIST-LUND, CARL | reporter.nih.gov |
| International Usher Syndrome Conference | NIH | National Institute on Deafness and Other Communication Disorders | 2025 | $60,000 | December 1, 2024 | November 30, 2025 | GELEOC, GWENAELLE S | reporter.nih.gov |
| 2020/2022 Auditory System GRC/GRS | NIH | National Institute on Deafness and Other Communication Disorders | 2022 | $49,875 | April 1, 2020 | August 31, 2024 | LITOVSKY, RUTH Y | reporter.nih.gov |
| Therapeutic approaches to treat vision loss in Usher syndrome | NIH | National Eye Institute | 2025 | $48,755 | July 15, 2025 | July 14, 2028 | KIM, JASON DONGJOON | reporter.nih.gov |
| Genetic Strategies for the Treatment of Usher Syndrome in Mice | NIH | National Eye Institute | 2021 | $37,889 | June 5, 2018 | June 4, 2022 | ROBILLARD, KATELYN N | reporter.nih.gov |
| Fetal gene therapy for congenital deafness and imbalance | NIH | National Institute on Deafness and Other Communication Disorders | 2021 | $26,611 | September 1, 2019 | August 31, 2022 | BRIGANDE, JOHN VINCENT | reporter.nih.gov |
Organizations
| Organization | Place | NIH awards | NIH amount | NSF awards | NSF amount |
|---|---|---|---|---|---|
| Massachusetts Eye and Ear Infirmary | Boston, MA | 2 | $5 million | 0 | $0 |
| Oregon Health & Science University | Portland, OR | 3 | $4.5 million | 0 | $0 |
| University of Maryland Baltimore | Baltimore, MD | 2 | $3.6 million | 0 | $0 |
| Boston Children's Hospital | Boston, MA | 3 | $3.2 million | 0 | $0 |
| LSU Health Sciences Center | New Orleans, LA | 4 | $3 million | 0 | $0 |
| University of Wisconsin-Madison | Madison, WI | 1 | $2.8 million | 0 | $0 |
| University of Florida | Gainesville, FL | 2 | $2.5 million | 0 | $0 |
| University of Kentucky | Lexington, KY | 2 | $2.4 million | 0 | $0 |
| University of Miami School of Medicine | Coral Gables, FL | 1 | $2.1 million | 0 | $0 |
| University of Utah | Salt Lake City, UT | 3 | $2 million | 0 | $0 |
| University of Virginia | Charlottesville, VA | 1 | $1.9 million | 0 | $0 |
| Johns Hopkins University | Baltimore, MD | 1 | $1.4 million | 0 | $0 |
| University of Alabama at Birmingham | Birmingham, AL | 1 | $1.3 million | 0 | $0 |
| Columbia University Health Sciences | New York, NY | 1 | $1.3 million | 0 | $0 |
| University of Houston | Houston, TX | 1 | $1.3 million | 0 | $0 |
| Ohio State University | Columbus, OH | 2 | $1.2 million | 0 | $0 |
| Harvard Medical School | Boston, MA | 3 | $1.1 million | 0 | $0 |
| Creighton University | Omaha, NE | 1 | $1 million | 0 | $0 |
| University of Texas Med BR Galveston | Galveston, TX | 1 | $981,574 | 0 | $0 |
| University of Chicago | Chicago, IL | 1 | $730,272 | 0 | $0 |
| University of Washington | Seattle, WA | 1 | $690,831 | 0 | $0 |
| West Virginia University Research Corporation | Morgantown, WV | 1 | $449,241 | 0 | $0 |
| Upstate Medical University | Syracuse, NY | 1 | $448,250 | 0 | $0 |
| Baylor College of Medicine | Houston, TX | 1 | $423,826 | 0 | $0 |
| Greffex, Inc. | Aurora, CO | 1 | $337,479 | 0 | $0 |
| Genetobe Inc. | Ann Arbor, MI | 1 | $289,895 | 0 | $0 |
| Weill Medical Coll of Cornell Univ | New York, NY | 1 | $201,224 | 0 | $0 |
| University of California Los Angeles | Los Angeles, CA | 1 | $189,150 | 0 | $0 |
| Gordon Research Conferences | East Greenwich, RI | 1 | $49,875 | 0 | $0 |
Funding by fiscal year
| Fiscal year | NIH awards | NIH amount | NSF awards | NSF amount |
|---|---|---|---|---|
| 2025 | 22 | $9,443,942 | 0 | $0 |
| 2024 | 22 | $10,720,144 | 0 | $0 |
| 2023 | 22 | $9,814,331 | 0 | $0 |
| 2022 | 23 | $9,104,969 | 0 | $0 |
| 2021 | 21 | $7,283,756 | 0 | $0 |
Open federal funding opportunities
From Grants.gov: notices that funded awards in this table, and open notices on the same agency and assistance listing.
Updated November 3, 2026. Read from NIH RePORTER ExPORTER and NSF Award Search. Published by NIH and NSF as U.S. government data. NIH awards are fiscal years 2021 to 2025 (NIH files published to 2026-07-09); NSF awards are fiscal years 2022 to 2026 (NSF files published to 2026-11-02). NIH amounts are the total cost of each fiscal year in the window; NSF amounts are the funds obligated in the window. Organizations are matched on the UEI. Open opportunities come from Grants.gov and match on agency and assistance listing number, and on the notice number NIH prints on an award. Free to reuse with credit to SpecStream under CC BY 4.0. Spot a wrong value? Write to [email protected] with the link to this page.