Data / Research funding / Myotonic Dystrophy
Myotonic Dystrophy: 47 NIH awards ($40.4M) to 23 organizations
47 NIH awards ($40.4M) in the NIH spending category Myotonic Dystrophy, to 23 organizations, read 2026-11-04. NIH fiscal years 2021 to 2025.
SpecStream is the live web data engine for teams and agents. It reads the NIH and NSF award files each time the agencies update them, and this page is that reading, joined to the open federal funding opportunities on Grants.gov. Ask for the awards you track by topic, organization or state and new awards arrive in your sheet, CRM, Slack or agent as the agencies publish them.
- Topic
- NIH spending category
Awards
47 awards in the window.
| Award | Agency | Institute or division | Fiscal year | Amount in window | Start | End | Principal investigator | Source |
|---|---|---|---|---|---|---|---|---|
| Senator Paul D. Wellstone Muscular Dystrophy Specialized Research Center | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2022 | $2,857,598 | September 30, 2003 | August 31, 2024 | THORNTON, CHARLES A | reporter.nih.gov |
| Therapeutic strategies for microsatellite expansion diseases using RNA targeting | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2025 | $2,491,089 | September 22, 2017 | November 30, 2027 | YEO, EUGENE WEI-MING | reporter.nih.gov |
| The role of TGFβs and cFAPs in Cardiac Pathology from RNA Toxicity | NIH | National Heart, Lung, and Blood Institute | 2023 to 2025 | $2,404,853 | July 1, 2023 | May 31, 2027 | MAHADEVAN, MANI SUBRAMANIAM | reporter.nih.gov |
| Identifying the RNA Splicing and Gene Expression Changes that Cause Congenital Myotonic Dystrophy (Renewal) | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2025 | $2,243,012 | April 1, 2018 | July 31, 2029 | JOHNSON, NICHOLAS ELWOOD | reporter.nih.gov |
| Design, Synthesis and Efficacy of New Small Molecule Therapeutics to Impede Myotonic Dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $2,142,960 | May 1, 2022 | March 31, 2027 | BERGLUND, ANDREW | reporter.nih.gov |
| Extracellular RNA biomarkers of myotonic dystrophy type 1 | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $2,126,281 | June 15, 2021 | May 31, 2025 | WHEELER, THURMAN M | reporter.nih.gov |
| RNA Processing-Mediated Mechanisms of CNS Dysfunction in Myotonic Dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2023 | $1,958,676 | July 1, 2019 | June 30, 2025 | WANG, ERIC T | reporter.nih.gov |
| Mechanisms of Skeletal Muscle Pathogenesis in Myotonic Dystrophy Type 1 | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2023 to 2025 | $1,864,085 | September 6, 2023 | August 31, 2028 | COOPER, THOMAS A | reporter.nih.gov |
| Mechanism of Skeletal Muscle Calcium Dysregulation in Myotonic Dystrophy | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2022 to 2025 | $1,832,760 | August 8, 2022 | June 30, 2027 | LUECK, JOHN D. | reporter.nih.gov |
| Mechanism and Function Of MBNL Mediated mRNA Localization in Neuronal Development and Neurologic Disease | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2024 | $1,653,327 | February 1, 2020 | January 31, 2026 | BASSELL, GARY J | reporter.nih.gov |
| Replication through DNA Structures and Consequences for Genome Stability | NIH | National Institute of General Medical Sciences | 2022 to 2025 | $1,623,623 | January 1, 2022 | December 31, 2026 | FREUDENREICH, CATHERINE H | reporter.nih.gov |
| LIM domain kinases: regulation and substrate recognition | NIH | National Institute of General Medical Sciences | 2022 to 2025 | $1,534,536 | September 1, 2022 | August 31, 2026 | BOGGON, TITUS JONATHON | reporter.nih.gov |
| CNS in Congenital DM1: Pathogenesis and Therapeutic Opportunities | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2024 | $1,422,143 | February 1, 2020 | January 31, 2026 | TIMCHENKO, LUBOV T | reporter.nih.gov |
| Small molecule therapeutics for myotonic dystrophy type 1 | NIH | National Institute of Neurological Disorders and Stroke | 2023 to 2025 | $1,293,169 | January 15, 2023 | December 31, 2027 | COMAI, LUCIO | reporter.nih.gov |
| Impeding transcription of expanded microsatellite repeats using deactivated Cas9 | NIH | National Institute on Aging | 2021 to 2023 | $1,133,433 | February 15, 2019 | December 31, 2023 | WANG, ERIC T | reporter.nih.gov |
| Technologies to enable safe and effective gene editing in skeletal muscle | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2024 to 2025 | $1,011,048 | September 10, 2024 | July 31, 2029 | WANG, ERIC T | reporter.nih.gov |
| GSK3 beta study in patients with Myotonic Dystrophy 1 | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 to 2023 | $916,916 | January 15, 2019 | December 31, 2024 | TIMCHENKO, LUBOV T | reporter.nih.gov |
| Pathogenic mechanisms and therapeutics for the cardiac manifestations of myotonic dystrophy type 1 | NIH | National Heart, Lung, and Blood Institute | 2021 to 2022 | $863,194 | April 15, 2019 | March 31, 2025 | COOPER, THOMAS A | reporter.nih.gov |
| Brain Structure and Clinical Endpoints in Myotonic Dystrophy Type 2 | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $850,142 | July 1, 2022 | June 30, 2027 | PUWANANT, ARAYA | reporter.nih.gov |
| Pharmacodynamic Biomarker of Myotonic Dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2023 to 2024 | $822,772 | August 1, 2023 | May 31, 2028 | THORNTON, CHARLES A | reporter.nih.gov |
| RNA Toxicity and Cardiac Pathology | NIH | National Heart, Lung, and Blood Institute | 2022 | $754,977 | September 21, 2022 | August 31, 2024 | MAHADEVAN, MANI SUBRAMANIAM | reporter.nih.gov |
| Extracellular RNA biomarkers of myotonic dystrophy type 1 | NIH | National Institute of Neurological Disorders and Stroke | 2025 | $653,302 | June 15, 2021 | May 31, 2027 | WHEELER, THURMAN M | reporter.nih.gov |
| Clinical and Non-Invasive Biomarkers of Myotonic Dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2023 to 2025 | $602,640 | December 15, 2022 | November 30, 2027 | GONZALEZ-PEREZ, PALOMA | reporter.nih.gov |
| Molecular Consequences of Myotonic Dystrophy Type 2-causing CCTG DNA Repeats | NIH | National Institute of General Medical Sciences | 2024 | $434,750 | August 1, 2024 | July 31, 2027 | KIM, JANE C | reporter.nih.gov |
| Mechanisms of altered RNA transport dynamics by Kif1C mutations in heterospastic paraplegia | NIH | National Institute of Neurological Disorders and Stroke | 2025 | $430,375 | July 1, 2025 | June 30, 2027 | BASSELL, GARY J | reporter.nih.gov |
| Development of MRI, Alternative Splicing, and Functional Abilities asBiomarkers in Myotonic Dystrophy Type 1 | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 to 2022 | $401,093 | August 17, 2020 | June 30, 2024 | LOTT, DONOVAN J | reporter.nih.gov |
| RNA Toxicity and Muscle Regeneration | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 | $385,227 | February 20, 2017 | December 31, 2021 | MAHADEVAN, MANI SUBRAMANIAM | reporter.nih.gov |
| Identification of components and mechanisms regulating expanded CUG-repeat RNP complexes in Myotonic Dystrophy Type 1 muscle cells | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2023 to 2024 | $381,920 | April 1, 2023 | March 31, 2026 | COOPER, THOMAS A | reporter.nih.gov |
| Small Molecule Approaches to Targeting the DNA and RNA in Myotonic Dystrophy | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 | $378,792 | March 1, 2017 | January 31, 2024 | ZIMMERMAN, STEVEN C. | reporter.nih.gov |
| Therapeutic Modulation of Myotonic Muscular Dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $370,563 | September 1, 2015 | June 30, 2022 | THORNTON, CHARLES A | reporter.nih.gov |
| Uncovering isoform-specific functions of RNA-binding protein Bruno1 in Drosophila muscle development | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2025 | $323,918 | September 15, 2025 | July 31, 2030 | SPLETTER, MARIA L | reporter.nih.gov |
| Application of RNA-targeting Cas9 to Fuchs' dystrophy | NIH | National Eye Institute | 2021 | $322,405 | April 1, 2018 | March 31, 2022 | YEO, EUGENE WEI-MING | reporter.nih.gov |
| In vivo imaging platform for DM1 drug discovery | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2025 | $313,148 | August 1, 2025 | July 31, 2026 | O'HANLON, RYAN | reporter.nih.gov |
| Scalable Non-viral Gene Delivery for Neuromuscular Diseases | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2025 | $306,859 | September 15, 2025 | August 31, 2026 | CHILDERS, MARTIN K | reporter.nih.gov |
| AI/ML and iPSC-Derived Organoids for Myotonic Dystrophy Drug Discovery | NIH | National Center for Advancing Translational Sciences | 2024 to 2025 | $302,500 | June 1, 2024 | May 31, 2026 | PANG, PAUL | reporter.nih.gov |
| Precise Length and 5-Methylcytosine Assessments of Repeat Sequences | NIH | National Human Genome Research Institute | 2021 | $271,933 | May 10, 2021 | April 30, 2023 | SCHIBEL, ANNA | reporter.nih.gov |
| The mechanism of CELF1 upregulation and its role in the pathogenesis of Myotonic Dystrophy Type 1 | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2023 to 2025 | $155,016 | January 1, 2024 | December 31, 2026 | NITSCHKE, LARISSA | reporter.nih.gov |
| MBNL loss of function in visceral smooth muscle as a model of myotonic dystrophy type 1 | NIH | National Institute of Diabetes and Digestive and Kidney Diseases | 2023 to 2025 | $148,642 | December 15, 2022 | December 14, 2025 | PETERSON, JANEL ANN MERKEL | reporter.nih.gov |
| Mechanisms of Myotonic Dystrophy Type 2-causing CCTG DNA Repeat Instability | NIH | National Institute of General Medical Sciences | 2021 | $111,750 | April 13, 2018 | March 31, 2023 | KIM, JANE C | reporter.nih.gov |
| Muscleblind facilitates kinesin dependent RNA localization in neurons | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2022 | $92,788 | September 21, 2020 | July 19, 2023 | KNUDSON, LUKE ANDREW | reporter.nih.gov |
| Genetic and pharmacologic elimination of myotonia from myotonic dystrophy type 1 | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2023 | $47,694 | August 1, 2023 | July 31, 2024 | SIPPLE, MATTHEW THOMAS | reporter.nih.gov |
| Implications of Epigenetic Regulation in Congenital Myotonic Dystrophy through Development | NIH | Eunice Kennedy Shriver National Institute of Child Health & Human Development | 2025 | $45,988 | December 5, 2025 | December 4, 2029 | HARTMAN, JULIA MARIE | reporter.nih.gov |
| Exploring the link between mutant RNA expression and trinucleotide repeat disease | NIH | National Eye Institute | 2021 | $34,751 | May 1, 2019 | April 30, 2023 | JOHNSON, SAMANTHA TORI | reporter.nih.gov |
| Development of RNA-Directed Therapeutics for Myotonic Dystrophy Type 1 Neuropathology | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $34,281 | July 1, 2019 | December 31, 2021 | MORELLI, KATHRYN H | reporter.nih.gov |
| Single-cell splicing analysis of the heart in myotonic dystrophy | NIH | National Heart, Lung, and Blood Institute | 2021 | $31,705 | August 12, 2020 | January 31, 2022 | PANG, PAUL | reporter.nih.gov |
| Coupling of muscle blind-dependent RNA processing to the circadian clock in neuronal homeostasis and sleep | NIH | National Heart, Lung, and Blood Institute | 2021 | $16,796 | March 1, 2019 | May 7, 2021 | PERELIS, MARK | reporter.nih.gov |
| 10th International Unstable Microsatellites and Human Disease Meeting | NIH | National Institute of Neurological Disorders and Stroke | 2025 | $10,200 | December 1, 2024 | November 30, 2025 | RANUM, LAURA P.W | reporter.nih.gov |
Organizations
| Organization | Place | NIH awards | NIH amount | NSF awards | NSF amount |
|---|---|---|---|---|---|
| University of Rochester | Rochester, NY | 5 | $5.9 million | 0 | $0 |
| University of Florida | Gainesville, FL | 5 | $4.5 million | 0 | $0 |
| University of Virginia | Charlottesville, VA | 3 | $3.5 million | 0 | $0 |
| Baylor College of Medicine | Houston, TX | 5 | $3.4 million | 0 | $0 |
| Massachusetts General Hospital | Boston, MA | 3 | $3.4 million | 0 | $0 |
| University of California, San Diego | La Jolla, CA | 4 | $2.9 million | 0 | $0 |
| Cincinnati Childrens Hosp Med CTR | Cincinnati, OH | 2 | $2.3 million | 0 | $0 |
| Virginia Commonwealth University | Richmond, VA | 2 | $2.3 million | 0 | $0 |
| Emory University | Atlanta, GA | 3 | $2.2 million | 0 | $0 |
| SUNY at Albany | Albany, NY | 1 | $2.1 million | 0 | $0 |
| Tufts University | Medford, MA | 1 | $1.6 million | 0 | $0 |
| Yale University | New Haven, CT | 1 | $1.5 million | 0 | $0 |
| University of Southern California | Los Angeles, CA | 1 | $1.3 million | 0 | $0 |
| Wake Forest University Health Sciences | Winston-Salem, NC | 1 | $850,142 | 0 | $0 |
| California State University San Marcos Corporation | San Marcos, CA | 2 | $546,500 | 0 | $0 |
| University of Illinois at Urbana-Champaign | Urbana, IL | 1 | $378,792 | 0 | $0 |
| University of Missouri-Kansas City | Kansas City, MO | 1 | $323,918 | 0 | $0 |
| Lucerna, Inc. | Brooklyn, NY | 1 | $313,148 | 0 | $0 |
| Kinea Bio, Inc. | Mukilteo, WA | 1 | $306,859 | 0 | $0 |
| Greenstone Biosciences, Inc. | Palo Alto, CA | 1 | $302,500 | 0 | $0 |
| Electronic Biosciences, Inc. | San Diego, CA | 1 | $271,933 | 0 | $0 |
| Ut Southwestern Medical Center | Dallas, TX | 1 | $34,751 | 0 | $0 |
| Stanford University | Stanford, CA | 1 | $31,705 | 0 | $0 |
Funding by fiscal year
| Fiscal year | NIH awards | NIH amount | NSF awards | NSF amount |
|---|---|---|---|---|
| 2025 | 22 | $8,169,921 | 0 | $0 |
| 2024 | 19 | $7,827,467 | 0 | $0 |
| 2023 | 20 | $7,477,942 | 0 | $0 |
| 2022 | 16 | $7,357,476 | 0 | $0 |
| 2021 | 22 | $9,576,824 | 0 | $0 |
Open federal funding opportunities
From Grants.gov: notices that funded awards in this table, and open notices on the same agency and assistance listing.
Updated November 4, 2026. Read from NIH RePORTER ExPORTER and NSF Award Search. Published by NIH and NSF as U.S. government data. NIH awards are fiscal years 2021 to 2025 (NIH files published to 2026-07-09); NSF awards are fiscal years 2022 to 2026 (NSF files published to 2026-11-04). NIH amounts are the total cost of each fiscal year in the window; NSF amounts are the funds obligated in the window. Organizations are matched on the UEI. Open opportunities come from Grants.gov and match on agency and assistance listing number, and on the notice number NIH prints on an award. Free to reuse with credit to SpecStream under CC BY 4.0. Spot a wrong value? Write to [email protected] with the link to this page.