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Data / Research funding / Dystonia

Dystonia: 65 NIH awards ($66.2M) to 29 organizations

65 NIH awards ($66.2M) in the NIH spending category Dystonia, to 29 organizations, read 2026-11-03. NIH fiscal years 2021 to 2025.

SpecStream is the live web data engine for teams and agents. It reads the NIH and NSF award files each time the agencies update them, and this page is that reading, joined to the open federal funding opportunities on Grants.gov. Ask for the awards you track by topic, organization or state and new awards arrive in your sheet, CRM, Slack or agent as the agencies publish them.

Topic
NIH spending category

Awards

65 awards in the window.

AwardAgencyInstitute or divisionFiscal yearAmount in windowStartEndPrincipal investigatorSource
Dystonia CoalitionNIHNational Institute of Neurological Disorders and Stroke2021 to 2023$4,243,735September 30, 2009August 31, 2025JINNAH, HYDER Areporter.nih.gov
Objective Measures for Clinical Assessment of Voice DisordersNIHNational Institute on Deafness and Other Communication Disorders2021 to 2025$2,744,284July 15, 2016May 31, 2027STEPP, CARA E.reporter.nih.gov
Imaging genetics of laryngeal dystoniaNIHNational Institute on Deafness and Other Communication Disorders2021 to 2025$2,496,823March 19, 2012July 31, 2028SIMONYAN, KRISTINAreporter.nih.gov
Cell Type Specific Genetic Manipulation to Dissect Cholinergic Interneuron Function and Plasticity in a Symptomatic Model of DYT1 DystoniaNIHNational Institute of Neurological Disorders and Stroke2021 to 2025$2,467,416February 1, 2021January 31, 2027DAUER, WILLIAM T.reporter.nih.gov
Genetic Variants in Craniofacial DystoniasNIHNational Institute of Dental & Craniofacial Research2022 to 2025$2,396,510September 1, 2022May 31, 2027SHARMA, NUTANreporter.nih.gov
The Role of Striatal Cholinergic Interneurons in DystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$2,393,905January 1, 2022December 31, 2026NORRIS, SCOTT ALLENreporter.nih.gov
Cerebellar deep brain stimulation for severe combined movement disorders and spasticity in children and young adults with cerebral palsyNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$2,095,277April 1, 2024March 31, 2029SAN LUCIANO, MARTAreporter.nih.gov
Neuronal Mechanisms Underlying Sex Differences in DystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$2,082,224September 15, 2022July 31, 2026HESS, ELLEN J.reporter.nih.gov
Progressive resistance exercise and dystonia pathophysiology.NIHNational Institute of Neurological Disorders and Stroke2022 to 2025$2,038,828September 1, 2022August 31, 2027WAGLE SHUKLA, APARNAreporter.nih.gov
Clinical Validation of DystoniaNet Deep Learning Platform for Diagnosis of Isolated DystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$2,029,889June 1, 2022April 30, 2028SIMONYAN, KRISTINAreporter.nih.gov
Assembling the Genetic Architecture of X-linked Dystonia ParkinsonismNIHNational Institute of Neurological Disorders and Stroke2021 to 2025$1,965,121September 1, 2017December 31, 2028TALKOWSKI, MICHAEL Ereporter.nih.gov
AAV-mediated gene therapy for CNS disease correction in feline NPC1 diseaseNIHNational Institute of Neurological Disorders and Stroke2021 to 2023$1,866,121December 15, 2020November 30, 2023VITE, CHARLES Hreporter.nih.gov
Role of DYT6 Dystonia Protein THAP1 in Oligodendroglial Mediated ECM Homeostasis During CNS DevelopmentNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$1,836,547July 1, 2022June 30, 2027YELLAJOSHYULA, DHANANJAYreporter.nih.gov
Adaptive closed-loop brain-computer interface therapeutic intervention in laryngeal dystoniaNIHNational Institute on Deafness and Other Communication Disorders2021 to 2025$1,806,250September 1, 2021August 31, 2027SIMONYAN, KRISTINAreporter.nih.gov
Reducing social isolation for adults with chronic communication disabilitiesNIHNational Institute on Deafness and Other Communication Disorders2021 to 2025$1,801,994April 5, 2021March 31, 2027BAYLOR, CAROLYN RAEreporter.nih.gov
Improving Focused Ultrasound Mediated Viral Gene Therapy DeliveryNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$1,631,895June 1, 2024April 30, 2029SHAH, BHAVYA RAMESHreporter.nih.gov
Cerebellar Deep Brain StimulationNIHNational Institute of Neurological Disorders and Stroke2021 to 2024$1,592,963September 30, 2020August 31, 2025SILLITOE, ROY VINCENTreporter.nih.gov
Cellular Pathophysiology of Neuronal Na/K-ATPase DysfunctionNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$1,587,968June 15, 2022April 30, 2027GEORGE, ALFRED L.reporter.nih.gov
Spatial and temporal pathophysiology of developmental dystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$1,552,838April 15, 2022March 31, 2027SILLITOE, ROY VINCENTreporter.nih.gov
Supplement: Pathophysiology of DYT1 dystonia: Targeted Mouse ModelsNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$1,522,479September 28, 2022August 31, 2027LI, YUQINGreporter.nih.gov
Deep phenotyping in blepharospasmNIHNational Institute of Neurological Disorders and Stroke2021 to 2024$1,513,616September 29, 2021June 30, 2026JINNAH, HYDER Areporter.nih.gov
Intrathecal baclofen and pediatric dystonia.NIHEunice Kennedy Shriver National Institute of Child Health & Human Development2024 to 2025$1,322,132September 1, 2024August 31, 2029THOMAS, SRUTHI PANDIPATIreporter.nih.gov
Development of an Animal Model of Task Specific DystoniaNIHNational Institute of Neurological Disorders and Stroke2021 to 2023$1,226,050September 21, 2020August 31, 2025DAUER, WILLIAM T.reporter.nih.gov
Role of KCTD proteins in striatal signalingNIHNational Institute of Neurological Disorders and Stroke2023 to 2025$1,143,450July 1, 2023June 30, 2028MUNTEAN, BRIAN Sreporter.nih.gov
Clinical trial readiness in X-linked dystonia parkinsonism: assessment of sensor-based and blood biomarkers for early detection and monitoring disease progressionNIHNational Institute of Neurological Disorders and Stroke2021 to 2025$1,098,495September 1, 2021July 31, 2026STEPHEN, CHRISTOPHER Dreporter.nih.gov
The effects of neural modulation on phonatory function in laryngeal dystoniaNIHNational Institute on Deafness and Other Communication Disorders2021 to 2025$978,323February 15, 2021January 31, 2027KIMBERLEY, TERESA JACOBSONreporter.nih.gov
Modulation of striatal cholinergic interneuron activity to prevent dystonic cerebral palsyNIHNational Institute of Neurological Disorders and Stroke2021 to 2025$926,830July 1, 2021June 30, 2026ARAVAMUTHAN, BHOOMAreporter.nih.gov
Cerebellar Dysfunction in DYT1NIHNational Institute of Neurological Disorders and Stroke2021 to 2022$920,608December 1, 2017November 30, 2022KHODAKHAH, KAMRANreporter.nih.gov
Non-Invasive Markers of Neurodegeneration in Movement DisordersNIHNational Institute of Neurological Disorders and Stroke2021 to 2022$821,316September 24, 2012July 31, 2024VAILLANCOURT, DAVID Ereporter.nih.gov
The structural underpinnings of disinhibition in dystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2025$777,397August 20, 2022July 31, 2027WAUGH, JEFFREY L.reporter.nih.gov
Intracerebroventricular cyclodextrin and AAV-mediated gene therapy forglobal CNS disease correction in feline NPC1 diseaseNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$773,585December 15, 2023November 30, 2026VITE, CHARLES Hreporter.nih.gov
M4 muscarinic acetylcholine receptor signaling as a potent regulator of motor deficitsNIHNational Institute of Neurological Disorders and Stroke2021 to 2023$742,049March 1, 2021February 29, 2024MOEHLE, MARK Sreporter.nih.gov
CLINICAL, GENETIC, AND CELLULAR CONSEQUENCES OF MUTATIONS IN NA,K-ATPASE ATP1A3NIHNational Institute of Neurological Disorders and Stroke2021$717,112April 1, 2008November 30, 2021BRASHEAR, ALLISONreporter.nih.gov
Coordination of Structure and Function in Corticospinal and Corticostriatal PathwaysNIHNational Institute of Neurological Disorders and Stroke2023 to 2025$705,895August 1, 2020March 31, 2026NELSON, ANDERSreporter.nih.gov
Motor Cortex Microcircuitry Underlying Movement Control and LearningNIHNational Institute of Neurological Disorders and Stroke2021 to 2022$684,688December 1, 2017November 30, 2023HOOKS, BRYAN MCIVERreporter.nih.gov
Central mechanisms and treatment response of sodium oxybate in spasmodic dysphonia and voice tremorNIHNational Institute on Deafness and Other Communication Disorders2021$614,041July 17, 2012August 31, 2025SIMONYAN, KRISTINAreporter.nih.gov
Cortical dystonia of prematurityNIHNational Institute of Neurological Disorders and Stroke2025$596,989August 1, 2025May 31, 2030ARAVAMUTHAN, BHOOMAreporter.nih.gov
Neuronal mechanisms underlying sex differences in dystoniaNIHNational Institute of Neurological Disorders and Stroke2021$538,671September 29, 2021September 5, 2022HESS, ELLEN J.reporter.nih.gov
Defining a Dystonia Specific Spiking Signature in Cerebellar Nuclei CellsNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$490,532January 15, 2023August 31, 2027VAN DER HEIJDEN, MEIKE ESTHERreporter.nih.gov
Acoustic and Physiological Outcome Measures for Laryngeal DystoniaNIHNational Institute on Deafness and Other Communication Disorders2025$468,199September 18, 2025August 31, 2028MARKS, KATHERINE LINDSEYreporter.nih.gov
DYT1 Genotype- and Phenotype-Specific Brain Circuits in DystoniaNIHNational Institute of Neurological Disorders and Stroke2021$464,999September 1, 2021February 28, 2025KIMBERLEY, TERESA JACOBSONreporter.nih.gov
Triangulating outcome assessments for blepharospasmNIHNational Center for Advancing Translational Sciences2024$450,836August 1, 2024July 31, 2026PETERSON, DAVID Areporter.nih.gov
Understanding the role of BORCS5 in neuronal lysosomal function and neurodegenerationNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$444,978December 1, 2023November 30, 2028MENCACCI, NICCOLO Ereporter.nih.gov
Immune Mechanisms in Cervical DystoniaNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$429,570September 1, 2024August 31, 2029SCORR, LAURA Mreporter.nih.gov
DNAJC12 in dopamine biology, physiology and related-behaviorNIHNational Institute of Neurological Disorders and Stroke2025$422,125August 15, 2025July 31, 2027FARRER, MATTHEW Jreporter.nih.gov
Recombinant botulinum toxin with improved safety and effectiveness for treatment of dystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2023$414,924March 1, 2022August 31, 2023BAND, PHILIP ARTHURreporter.nih.gov
Studying the Laryngeal Mechanisms Underlying Dysphonia in Connected SpeechNIHNational Institute on Deafness and Other Communication Disorders2021 to 2023$413,385April 1, 2019March 31, 2026NAGHIBOLHOSSEINI, MARYAMreporter.nih.gov
Molecular mechanisms of dystonia and spastic paraplegia associated with mutations in ATP5G3NIHNational Institute of Neurological Disorders and Stroke2023$406,550April 1, 2023March 31, 2025SLONE, JESSE DAVIDreporter.nih.gov
Synergistic clinical outcome assessments for cervical dystoniaNIHNational Center for Advancing Translational Sciences2023 to 2024$398,916July 1, 2023June 30, 2026PETERSON, DAVID Areporter.nih.gov
Pathobiology of GNAL-Associated DystoniaNIHNational Institute of Neurological Disorders and Stroke2022 to 2023$394,625March 15, 2022February 28, 2025LEDOUX, MARK Sreporter.nih.gov
Modeling DYT1 Dystonia in Patient-derived NeuronsNIHNational Institute of Neurological Disorders and Stroke2023$365,000September 1, 2023August 31, 2025DING, BAOJINreporter.nih.gov
A Multimodal Assessment of Neurophysiology in Focal DystoniaNIHNational Institute on Deafness and Other Communication Disorders2021$316,941January 1, 2017December 31, 2023KIMBERLEY, TERESA JACOBSONreporter.nih.gov
TorsinA mediated regulation of Cdc42 signaling and DYT1 dystoniaNIHNational Institute of General Medical Sciences2021$314,000September 17, 2018August 31, 2023LUXTON, GEORGE WILLIAM GANTreporter.nih.gov
Natural history study of x-linked Dystonia ParkinsonismNIHNational Institute of Neurological Disorders and Stroke2021$210,000June 15, 2020November 30, 2022SHARMA, NUTANreporter.nih.gov
Optimizing Phenogenotypic and Neuromodulation Predictors in Deep BrainStimulation Surgery for Isolated DystoniaNIHNational Institute of Neurological Disorders and Stroke2021$199,962September 1, 2017August 31, 2023SAN LUCIANO, MARTAreporter.nih.gov
Pharmacogenomic Contribution to the Biotransformation of Trihexyphenidyl and Development of a Precision Dosing Model for Children with Dystonia and Cerebral PalsyNIHEunice Kennedy Shriver National Institute of Child Health & Human Development2025$164,160January 20, 2025December 31, 2029GELINEAU-MOREL, ROSE NICOLEreporter.nih.gov
Identification and characterization of the gene associated with the spontaneous autosomal recessive Spinning miceNIHNational Institute of Neurological Disorders and Stroke2021$154,000May 15, 2021November 30, 2023XIAO, JIANFENGreporter.nih.gov
Adult-onset Purkinje cell loss in cerebellar dysfunctionNIHNational Institute of Neurological Disorders and Stroke2022 to 2024$145,920August 1, 2022July 31, 2025DONOFRIO, SARAHreporter.nih.gov
A two-hit hypothesis for dystonia pathophysiology: Cerebello-thalamo-striatal dysfunction and connectivity in DYT1 miceNIHNational Institute of Neurological Disorders and Stroke2022 to 2023$144,774July 1, 2022June 30, 2024MITERKO, LAUREN NICOLEreporter.nih.gov
Validation of an automated acoustic outcome measure for AdLDNIHNational Institute on Deafness and Other Communication Disorders2022 to 2023$142,074August 10, 2022August 9, 2024MARKS, KATHERINE LINDSEYreporter.nih.gov
Understanding the Genetic and Epigenetic Mechanisms in X-linked Dystonia Parkinsonism and Repeat Expansion DiseasesNIHNational Institute of Neurological Disorders and Stroke2025$129,170August 1, 2025July 31, 2027MEJIA MAZA, ALANreporter.nih.gov
Coordination of Structure and Function in Corticospinal and Corticostriatal PathwaysNIHNational Institute of Neurological Disorders and Stroke2021$125,442August 1, 2020July 31, 2022NELSON, ANDERSreporter.nih.gov
Defining a Dystonia Specific Spiking Signature in Cerebellar Nuclei CellsNIHNational Institute of Neurological Disorders and Stroke2023$121,782January 15, 2023December 1, 2023VAN DER HEIJDEN, MEIKE ESTHERreporter.nih.gov
Determining how a single-residue PKR mutation found in patients with familial dystonia causes aberrant PKR activationNIHNational Institute of Neurological Disorders and Stroke2024 to 2025$98,512July 1, 2024June 30, 2028GERTIE, JAKE ANDERSreporter.nih.gov
Beyond theta: analyzing oscillations across the frequency spectrum in patients with dystonia implanted with sensing-enabled pulse generatorsNIHNational Institute of Neurological Disorders and Stroke2023$69,080May 1, 2023April 30, 2026CERNERA, STEPHANIE LYNNreporter.nih.gov

Organizations

OrganizationPlaceNIH awardsNIH amountNSF awardsNSF amount
Emory UniversityAtlanta, GA6$9.3 million0$0
Massachusetts Eye and Ear InfirmaryBoston, MA4$6.9 million0$0
University of FloridaGainesville, FL6$6.3 million0$0
Ut Southwestern Medical CenterDallas, TX5$6.2 million0$0
Massachusetts General HospitalBoston, MA5$5.8 million0$0
Baylor College of MedicineHouston, TX5$4.7 million0$0
Washington UniversitySaint Louis, MO3$3.9 million0$0
Trustees of Boston UniversityBoston, MA2$2.9 million0$0
University of California, San FranciscoSan Francisco, CA3$2.4 million0$0
Northwestern University at ChicagoChicago, IL2$2 million0$0
University of PennsylvaniaPhiladelphia, PA1$1.9 million0$0
Case Western Reserve UniversityCleveland, OH1$1.8 million0$0
University of WashingtonSeattle, WA1$1.8 million0$0
MGH Institute of Health ProfessionsCharlestown, MA3$1.8 million0$0
Augusta UniversityAugusta, GA1$1.1 million0$0
University of California at DavisDavis, CA2$1 million0$0
Albert Einstein College of MedicineBronx, NY1$920,6080$0
University of California, San DiegoLa Jolla, CA2$849,7520$0
New York UniversityNew York, NY1$705,8950$0
University of Pittsburgh at PittsburghPittsburgh, PA1$684,6880$0
Virginia Polytechnic Institute and State UniversityBlacksburg, VA1$490,5320$0
Cytodel, Inc.New York, NY1$414,9240$0
Michigan State UniversityEast Lansing, MI1$413,3850$0
SUNY at BuffaloAmherst, NY1$406,5500$0
University of MemphisMemphis, TN1$394,6250$0
Louisiana State Univ HSC ShreveportShreveport, LA1$365,0000$0
Columbia University Health SciencesNew York, NY2$223,9540$0
Children's Mercy Hosp (kansas City, Mo)Kansas City, MO1$164,1600$0
University of Tennessee Health Sci CTRMemphis, TN1$154,0000$0

Funding by fiscal year

Fiscal yearNIH awardsNIH amountNSF awardsNSF amount
202534$14,125,5630$0
202433$12,730,4020$0
202337$13,514,9280$0
202233$13,525,5300$0
202129$12,258,3470$0

Open federal funding opportunities

From Grants.gov: notices that funded awards in this table, and open notices on the same agency and assistance listing.

Open opportunityNumberAgencyListingClosesAward ceilingWhy it matches
NIH Pathway to Independence Award (Parent K99/R00 Independent Clinical Trial Not Allowed)PA-24-194NIHMay 7, 2027Not listedNotice number printed on 1 award here
NIDCD Early Career Research(ECR) Award (R21 Clinical Trial Optional)PAR-25-120NIHOctober 15, 2027Not listedNotice number printed on 1 award here
Functional Target Validation for Alzheimer's Disease-Related DementiasRFA-NS-26-034NIH93.853November 6, 2026Not listedSame assistance listing 93.853 as 49 awards here
Clinical Trials and Ancillary Studies Conducted within NIH-Funded Clinical Trial Research Networks (UG3/UH3 - Clinical Trial Required)PAR-27-007NIH93.853November 10, 2026Not listedSame assistance listing 93.853 as 49 awards here
Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required)RFA-NS-26-001NIH93.853November 10, 2026Not listedSame assistance listing 93.853 as 49 awards here
Genomic and Biologic Therapies for ADRD (U01 Clinical Trial Optional)RFA-NS-26-030NIH93.853November 10, 2026Not listedSame assistance listing 93.853 as 49 awards here
Ethical, Legal and Social Implications (ELSI) Exploratory/Developmental Research Grant (R21 Clinical Trial Optional)PAR-25-369NIH93.853November 18, 2026Not listedSame assistance listing 93.853 as 49 awards here
Ethical, Legal and Social Implications (ELSI) Research (R01 Clinical Trial Optional)PAR-25-371NIH93.853November 18, 2026Not listedSame assistance listing 93.853 as 49 awards here
NIH StrokeNet Clinical Trials and Biomarker Studies for Stroke Treatment, Recovery, and Prevention (UG3/UH3 Clinical Trial Optional)PAR-25-052NIH93.853November 19, 2026Not listedSame assistance listing 93.853 as 49 awards here
HEAL Initiative: Pain Research Enhancement Program (PREP) (R15 Clinical Trial Optional)RFA-AT-25-003NIH93.853November 23, 2026$375,000Same assistance listing 93.853 as 49 awards here
Maximizing the Scientific Value of Data Generated by the Environmental Influences on Child Health Outcomes (ECHO) Program: Ruth L. Kirschstein National Research Service Award (NRSA) Individual Postdoctoral Fellowship (F32)RFA-OD-27-008NIH93.853December 2, 2026Not listedSame assistance listing 93.853 as 49 awards here
Emerging Global Leader Award (K43 Independent Clinical Trial Required)PAR-24-295NIH93.853December 3, 2026Not listedSame assistance listing 93.853 as 49 awards here
Emerging Global Leader Award (K43 Independent Clinical Trial Not Allowed)PAR-24-296NIH93.853December 3, 2026Not listedSame assistance listing 93.853 as 49 awards here
NIH Research Software Engineer (RSE) Award (R50 Clinical Trials Not Allowed)RFA-OD-24-011NIH93.853December 4, 2026Not listedSame assistance listing 93.853 as 49 awards here
Academic Research Enhancement Award (AREA) for Undergraduate-Focused Institutions (R15 Clinical Trial Required)PAR-24-214NIH93.853January 7, 2027$375,000Same assistance listing 93.853 as 49 awards here
HEAL Initiative: Studies to Enable Analgesic Discovery (R61/R33 - Clinical Trial Not Allowed)RFA-NS-25-023NIH93.853January 15, 2027$350,000Same assistance listing 93.853 as 49 awards here
HEAL Initiative: Integrative Management of Chronic Pain and OUD for Whole Recovery (IMPOWR): Research Centers (RM1 Clinical Trial Required)RFA-DA-28-011NIH93.853January 26, 2027Not listedSame assistance listing 93.853 as 49 awards here
HEAL Initiative: Integrative Management of chronic Pain and OUD for Whole Recovery (IMPOWR) - Building Engagement, Assistance, Capacity, Outreach, and Networks (BEACON) Center (U2C Clinical Trial Not Allowed)RFA-DA-28-012NIH93.853January 26, 2027Not listedSame assistance listing 93.853 as 49 awards here
Biomedical Research Environment and Sponsored Programs Administration Development (BRE-SPAD) Program (UC2- Clinical Trial Not Allowed)PAR-24-268NIH93.853January 27, 2027$500,000Same assistance listing 93.853 as 49 awards here
Translational Neural Devices (R61/R33 - Clinical Trial Optional)PAR-25-053NIH93.853January 28, 2027Not listedSame assistance listing 93.853 as 49 awards here

Updated November 3, 2026. Read from NIH RePORTER ExPORTER and NSF Award Search. Published by NIH and NSF as U.S. government data. NIH awards are fiscal years 2021 to 2025 (NIH files published to 2026-07-09); NSF awards are fiscal years 2022 to 2026 (NSF files published to 2026-11-02). NIH amounts are the total cost of each fiscal year in the window; NSF amounts are the funds obligated in the window. Organizations are matched on the UEI. Open opportunities come from Grants.gov and match on agency and assistance listing number, and on the notice number NIH prints on an award. Free to reuse with credit to SpecStream under CC BY 4.0. Spot a wrong value? Write to [email protected] with the link to this page.