Data / Research funding / Dystonia
Dystonia: 65 NIH awards ($66.2M) to 29 organizations
65 NIH awards ($66.2M) in the NIH spending category Dystonia, to 29 organizations, read 2026-11-03. NIH fiscal years 2021 to 2025.
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Awards
65 awards in the window.
| Award | Agency | Institute or division | Fiscal year | Amount in window | Start | End | Principal investigator | Source |
|---|---|---|---|---|---|---|---|---|
| Dystonia Coalition | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2023 | $4,243,735 | September 30, 2009 | August 31, 2025 | JINNAH, HYDER A | reporter.nih.gov |
| Objective Measures for Clinical Assessment of Voice Disorders | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $2,744,284 | July 15, 2016 | May 31, 2027 | STEPP, CARA E. | reporter.nih.gov |
| Imaging genetics of laryngeal dystonia | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $2,496,823 | March 19, 2012 | July 31, 2028 | SIMONYAN, KRISTINA | reporter.nih.gov |
| Cell Type Specific Genetic Manipulation to Dissect Cholinergic Interneuron Function and Plasticity in a Symptomatic Model of DYT1 Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2025 | $2,467,416 | February 1, 2021 | January 31, 2027 | DAUER, WILLIAM T. | reporter.nih.gov |
| Genetic Variants in Craniofacial Dystonias | NIH | National Institute of Dental & Craniofacial Research | 2022 to 2025 | $2,396,510 | September 1, 2022 | May 31, 2027 | SHARMA, NUTAN | reporter.nih.gov |
| The Role of Striatal Cholinergic Interneurons in Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $2,393,905 | January 1, 2022 | December 31, 2026 | NORRIS, SCOTT ALLEN | reporter.nih.gov |
| Cerebellar deep brain stimulation for severe combined movement disorders and spasticity in children and young adults with cerebral palsy | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $2,095,277 | April 1, 2024 | March 31, 2029 | SAN LUCIANO, MARTA | reporter.nih.gov |
| Neuronal Mechanisms Underlying Sex Differences in Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $2,082,224 | September 15, 2022 | July 31, 2026 | HESS, ELLEN J. | reporter.nih.gov |
| Progressive resistance exercise and dystonia pathophysiology. | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $2,038,828 | September 1, 2022 | August 31, 2027 | WAGLE SHUKLA, APARNA | reporter.nih.gov |
| Clinical Validation of DystoniaNet Deep Learning Platform for Diagnosis of Isolated Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $2,029,889 | June 1, 2022 | April 30, 2028 | SIMONYAN, KRISTINA | reporter.nih.gov |
| Assembling the Genetic Architecture of X-linked Dystonia Parkinsonism | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2025 | $1,965,121 | September 1, 2017 | December 31, 2028 | TALKOWSKI, MICHAEL E | reporter.nih.gov |
| AAV-mediated gene therapy for CNS disease correction in feline NPC1 disease | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2023 | $1,866,121 | December 15, 2020 | November 30, 2023 | VITE, CHARLES H | reporter.nih.gov |
| Role of DYT6 Dystonia Protein THAP1 in Oligodendroglial Mediated ECM Homeostasis During CNS Development | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $1,836,547 | July 1, 2022 | June 30, 2027 | YELLAJOSHYULA, DHANANJAY | reporter.nih.gov |
| Adaptive closed-loop brain-computer interface therapeutic intervention in laryngeal dystonia | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $1,806,250 | September 1, 2021 | August 31, 2027 | SIMONYAN, KRISTINA | reporter.nih.gov |
| Reducing social isolation for adults with chronic communication disabilities | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $1,801,994 | April 5, 2021 | March 31, 2027 | BAYLOR, CAROLYN RAE | reporter.nih.gov |
| Improving Focused Ultrasound Mediated Viral Gene Therapy Delivery | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $1,631,895 | June 1, 2024 | April 30, 2029 | SHAH, BHAVYA RAMESH | reporter.nih.gov |
| Cerebellar Deep Brain Stimulation | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2024 | $1,592,963 | September 30, 2020 | August 31, 2025 | SILLITOE, ROY VINCENT | reporter.nih.gov |
| Cellular Pathophysiology of Neuronal Na/K-ATPase Dysfunction | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $1,587,968 | June 15, 2022 | April 30, 2027 | GEORGE, ALFRED L. | reporter.nih.gov |
| Spatial and temporal pathophysiology of developmental dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $1,552,838 | April 15, 2022 | March 31, 2027 | SILLITOE, ROY VINCENT | reporter.nih.gov |
| Supplement: Pathophysiology of DYT1 dystonia: Targeted Mouse Models | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $1,522,479 | September 28, 2022 | August 31, 2027 | LI, YUQING | reporter.nih.gov |
| Deep phenotyping in blepharospasm | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2024 | $1,513,616 | September 29, 2021 | June 30, 2026 | JINNAH, HYDER A | reporter.nih.gov |
| Intrathecal baclofen and pediatric dystonia. | NIH | Eunice Kennedy Shriver National Institute of Child Health & Human Development | 2024 to 2025 | $1,322,132 | September 1, 2024 | August 31, 2029 | THOMAS, SRUTHI PANDIPATI | reporter.nih.gov |
| Development of an Animal Model of Task Specific Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2023 | $1,226,050 | September 21, 2020 | August 31, 2025 | DAUER, WILLIAM T. | reporter.nih.gov |
| Role of KCTD proteins in striatal signaling | NIH | National Institute of Neurological Disorders and Stroke | 2023 to 2025 | $1,143,450 | July 1, 2023 | June 30, 2028 | MUNTEAN, BRIAN S | reporter.nih.gov |
| Clinical trial readiness in X-linked dystonia parkinsonism: assessment of sensor-based and blood biomarkers for early detection and monitoring disease progression | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2025 | $1,098,495 | September 1, 2021 | July 31, 2026 | STEPHEN, CHRISTOPHER D | reporter.nih.gov |
| The effects of neural modulation on phonatory function in laryngeal dystonia | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2025 | $978,323 | February 15, 2021 | January 31, 2027 | KIMBERLEY, TERESA JACOBSON | reporter.nih.gov |
| Modulation of striatal cholinergic interneuron activity to prevent dystonic cerebral palsy | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2025 | $926,830 | July 1, 2021 | June 30, 2026 | ARAVAMUTHAN, BHOOMA | reporter.nih.gov |
| Cerebellar Dysfunction in DYT1 | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2022 | $920,608 | December 1, 2017 | November 30, 2022 | KHODAKHAH, KAMRAN | reporter.nih.gov |
| Non-Invasive Markers of Neurodegeneration in Movement Disorders | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2022 | $821,316 | September 24, 2012 | July 31, 2024 | VAILLANCOURT, DAVID E | reporter.nih.gov |
| The structural underpinnings of disinhibition in dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2025 | $777,397 | August 20, 2022 | July 31, 2027 | WAUGH, JEFFREY L. | reporter.nih.gov |
| Intracerebroventricular cyclodextrin and AAV-mediated gene therapy forglobal CNS disease correction in feline NPC1 disease | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $773,585 | December 15, 2023 | November 30, 2026 | VITE, CHARLES H | reporter.nih.gov |
| M4 muscarinic acetylcholine receptor signaling as a potent regulator of motor deficits | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2023 | $742,049 | March 1, 2021 | February 29, 2024 | MOEHLE, MARK S | reporter.nih.gov |
| CLINICAL, GENETIC, AND CELLULAR CONSEQUENCES OF MUTATIONS IN NA,K-ATPASE ATP1A3 | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $717,112 | April 1, 2008 | November 30, 2021 | BRASHEAR, ALLISON | reporter.nih.gov |
| Coordination of Structure and Function in Corticospinal and Corticostriatal Pathways | NIH | National Institute of Neurological Disorders and Stroke | 2023 to 2025 | $705,895 | August 1, 2020 | March 31, 2026 | NELSON, ANDERS | reporter.nih.gov |
| Motor Cortex Microcircuitry Underlying Movement Control and Learning | NIH | National Institute of Neurological Disorders and Stroke | 2021 to 2022 | $684,688 | December 1, 2017 | November 30, 2023 | HOOKS, BRYAN MCIVER | reporter.nih.gov |
| Central mechanisms and treatment response of sodium oxybate in spasmodic dysphonia and voice tremor | NIH | National Institute on Deafness and Other Communication Disorders | 2021 | $614,041 | July 17, 2012 | August 31, 2025 | SIMONYAN, KRISTINA | reporter.nih.gov |
| Cortical dystonia of prematurity | NIH | National Institute of Neurological Disorders and Stroke | 2025 | $596,989 | August 1, 2025 | May 31, 2030 | ARAVAMUTHAN, BHOOMA | reporter.nih.gov |
| Neuronal mechanisms underlying sex differences in dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $538,671 | September 29, 2021 | September 5, 2022 | HESS, ELLEN J. | reporter.nih.gov |
| Defining a Dystonia Specific Spiking Signature in Cerebellar Nuclei Cells | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $490,532 | January 15, 2023 | August 31, 2027 | VAN DER HEIJDEN, MEIKE ESTHER | reporter.nih.gov |
| Acoustic and Physiological Outcome Measures for Laryngeal Dystonia | NIH | National Institute on Deafness and Other Communication Disorders | 2025 | $468,199 | September 18, 2025 | August 31, 2028 | MARKS, KATHERINE LINDSEY | reporter.nih.gov |
| DYT1 Genotype- and Phenotype-Specific Brain Circuits in Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $464,999 | September 1, 2021 | February 28, 2025 | KIMBERLEY, TERESA JACOBSON | reporter.nih.gov |
| Triangulating outcome assessments for blepharospasm | NIH | National Center for Advancing Translational Sciences | 2024 | $450,836 | August 1, 2024 | July 31, 2026 | PETERSON, DAVID A | reporter.nih.gov |
| Understanding the role of BORCS5 in neuronal lysosomal function and neurodegeneration | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $444,978 | December 1, 2023 | November 30, 2028 | MENCACCI, NICCOLO E | reporter.nih.gov |
| Immune Mechanisms in Cervical Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $429,570 | September 1, 2024 | August 31, 2029 | SCORR, LAURA M | reporter.nih.gov |
| DNAJC12 in dopamine biology, physiology and related-behavior | NIH | National Institute of Neurological Disorders and Stroke | 2025 | $422,125 | August 15, 2025 | July 31, 2027 | FARRER, MATTHEW J | reporter.nih.gov |
| Recombinant botulinum toxin with improved safety and effectiveness for treatment of dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2023 | $414,924 | March 1, 2022 | August 31, 2023 | BAND, PHILIP ARTHUR | reporter.nih.gov |
| Studying the Laryngeal Mechanisms Underlying Dysphonia in Connected Speech | NIH | National Institute on Deafness and Other Communication Disorders | 2021 to 2023 | $413,385 | April 1, 2019 | March 31, 2026 | NAGHIBOLHOSSEINI, MARYAM | reporter.nih.gov |
| Molecular mechanisms of dystonia and spastic paraplegia associated with mutations in ATP5G3 | NIH | National Institute of Neurological Disorders and Stroke | 2023 | $406,550 | April 1, 2023 | March 31, 2025 | SLONE, JESSE DAVID | reporter.nih.gov |
| Synergistic clinical outcome assessments for cervical dystonia | NIH | National Center for Advancing Translational Sciences | 2023 to 2024 | $398,916 | July 1, 2023 | June 30, 2026 | PETERSON, DAVID A | reporter.nih.gov |
| Pathobiology of GNAL-Associated Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2023 | $394,625 | March 15, 2022 | February 28, 2025 | LEDOUX, MARK S | reporter.nih.gov |
| Modeling DYT1 Dystonia in Patient-derived Neurons | NIH | National Institute of Neurological Disorders and Stroke | 2023 | $365,000 | September 1, 2023 | August 31, 2025 | DING, BAOJIN | reporter.nih.gov |
| A Multimodal Assessment of Neurophysiology in Focal Dystonia | NIH | National Institute on Deafness and Other Communication Disorders | 2021 | $316,941 | January 1, 2017 | December 31, 2023 | KIMBERLEY, TERESA JACOBSON | reporter.nih.gov |
| TorsinA mediated regulation of Cdc42 signaling and DYT1 dystonia | NIH | National Institute of General Medical Sciences | 2021 | $314,000 | September 17, 2018 | August 31, 2023 | LUXTON, GEORGE WILLIAM GANT | reporter.nih.gov |
| Natural history study of x-linked Dystonia Parkinsonism | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $210,000 | June 15, 2020 | November 30, 2022 | SHARMA, NUTAN | reporter.nih.gov |
| Optimizing Phenogenotypic and Neuromodulation Predictors in Deep BrainStimulation Surgery for Isolated Dystonia | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $199,962 | September 1, 2017 | August 31, 2023 | SAN LUCIANO, MARTA | reporter.nih.gov |
| Pharmacogenomic Contribution to the Biotransformation of Trihexyphenidyl and Development of a Precision Dosing Model for Children with Dystonia and Cerebral Palsy | NIH | Eunice Kennedy Shriver National Institute of Child Health & Human Development | 2025 | $164,160 | January 20, 2025 | December 31, 2029 | GELINEAU-MOREL, ROSE NICOLE | reporter.nih.gov |
| Identification and characterization of the gene associated with the spontaneous autosomal recessive Spinning mice | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $154,000 | May 15, 2021 | November 30, 2023 | XIAO, JIANFENG | reporter.nih.gov |
| Adult-onset Purkinje cell loss in cerebellar dysfunction | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2024 | $145,920 | August 1, 2022 | July 31, 2025 | DONOFRIO, SARAH | reporter.nih.gov |
| A two-hit hypothesis for dystonia pathophysiology: Cerebello-thalamo-striatal dysfunction and connectivity in DYT1 mice | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2023 | $144,774 | July 1, 2022 | June 30, 2024 | MITERKO, LAUREN NICOLE | reporter.nih.gov |
| Validation of an automated acoustic outcome measure for AdLD | NIH | National Institute on Deafness and Other Communication Disorders | 2022 to 2023 | $142,074 | August 10, 2022 | August 9, 2024 | MARKS, KATHERINE LINDSEY | reporter.nih.gov |
| Understanding the Genetic and Epigenetic Mechanisms in X-linked Dystonia Parkinsonism and Repeat Expansion Diseases | NIH | National Institute of Neurological Disorders and Stroke | 2025 | $129,170 | August 1, 2025 | July 31, 2027 | MEJIA MAZA, ALAN | reporter.nih.gov |
| Coordination of Structure and Function in Corticospinal and Corticostriatal Pathways | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $125,442 | August 1, 2020 | July 31, 2022 | NELSON, ANDERS | reporter.nih.gov |
| Defining a Dystonia Specific Spiking Signature in Cerebellar Nuclei Cells | NIH | National Institute of Neurological Disorders and Stroke | 2023 | $121,782 | January 15, 2023 | December 1, 2023 | VAN DER HEIJDEN, MEIKE ESTHER | reporter.nih.gov |
| Determining how a single-residue PKR mutation found in patients with familial dystonia causes aberrant PKR activation | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $98,512 | July 1, 2024 | June 30, 2028 | GERTIE, JAKE ANDERS | reporter.nih.gov |
| Beyond theta: analyzing oscillations across the frequency spectrum in patients with dystonia implanted with sensing-enabled pulse generators | NIH | National Institute of Neurological Disorders and Stroke | 2023 | $69,080 | May 1, 2023 | April 30, 2026 | CERNERA, STEPHANIE LYNN | reporter.nih.gov |
Organizations
Funding by fiscal year
| Fiscal year | NIH awards | NIH amount | NSF awards | NSF amount |
|---|---|---|---|---|
| 2025 | 34 | $14,125,563 | 0 | $0 |
| 2024 | 33 | $12,730,402 | 0 | $0 |
| 2023 | 37 | $13,514,928 | 0 | $0 |
| 2022 | 33 | $13,525,530 | 0 | $0 |
| 2021 | 29 | $12,258,347 | 0 | $0 |
Open federal funding opportunities
From Grants.gov: notices that funded awards in this table, and open notices on the same agency and assistance listing.
Updated November 3, 2026. Read from NIH RePORTER ExPORTER and NSF Award Search. Published by NIH and NSF as U.S. government data. NIH awards are fiscal years 2021 to 2025 (NIH files published to 2026-07-09); NSF awards are fiscal years 2022 to 2026 (NSF files published to 2026-11-02). NIH amounts are the total cost of each fiscal year in the window; NSF amounts are the funds obligated in the window. Organizations are matched on the UEI. Open opportunities come from Grants.gov and match on agency and assistance listing number, and on the notice number NIH prints on an award. Free to reuse with credit to SpecStream under CC BY 4.0. Spot a wrong value? Write to [email protected] with the link to this page.