Data / Research funding / Congenital Muscular Dystrophy
Congenital Muscular Dystrophy: 22 NIH awards ($18.2M) to 17 organizations
22 NIH awards ($18.2M) in the NIH spending category Congenital Muscular Dystrophy, to 17 organizations, read 2026-11-03. NIH fiscal years 2021 to 2025.
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Awards
22 awards in the window.
| Award | Agency | Institute or division | Fiscal year | Amount in window | Start | End | Principal investigator | Source |
|---|---|---|---|---|---|---|---|---|
| Clinical Trial Readiness for Children 0-5 years with Congenital Muscular Dystrophy Secondary to LAMA2 Mutations | NIH | National Institute of Neurological Disorders and Stroke | 2023 to 2025 | $2,998,564 | September 18, 2023 | August 31, 2028 | CONNOLLY, ANNE M | reporter.nih.gov |
| Therapeutic genetics and disease modeling in LAMA2-CMD | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2022 to 2025 | $1,737,152 | July 1, 2022 | May 31, 2027 | VOCKLEY, GERARD | reporter.nih.gov |
| Targeting Dystroglycanopathies using Pluripotent-derived Myogenic Progenitors | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2023 to 2025 | $1,583,772 | February 10, 2023 | November 30, 2027 | PERLINGEIRO, RITA C. R. | reporter.nih.gov |
| Structure and Function in alpha-Dystroglycan Glycosylation | NIH | National Institute of General Medical Sciences | 2021 to 2025 | $1,494,481 | August 1, 2014 | January 31, 2027 | WELLS, LANCE | reporter.nih.gov |
| Cellular protein maturation and degradation | NIH | National Institute of General Medical Sciences | 2021 to 2025 | $1,154,706 | April 1, 1999 | October 31, 2025 | RAUCH, JENNIFER NICOLE | reporter.nih.gov |
| Single and Double AAV Somatic Gene Amelioration of Mouse Models of LAMA2 Related Dystrophy | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2025 | $1,091,199 | August 7, 2025 | July 31, 2028 | YURCHENCO, PETER DANA | reporter.nih.gov |
| Massively-parallel functional interrogation of genetic variation in CMD-associated alpha-dystroglycan glycosylating enzymes | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2023 to 2025 | $1,039,693 | September 26, 2023 | June 30, 2028 | HALLER, GABRIEL E | reporter.nih.gov |
| In vivo role of the fibroblast in muscular dystrophy-Renewal | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 to 2025 | $1,026,671 | April 1, 2018 | June 30, 2030 | VANHOUTTE, DAVY | reporter.nih.gov |
| Mechanisms of NAD+ action during muscle development and homeostasis in a zebrafish dystroglycanopathy model | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 to 2023 | $950,752 | August 2, 2019 | July 31, 2025 | HENRY, CLARISSA A | reporter.nih.gov |
| Synaptic dysfunction in models of dystroglycanopathy | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $934,532 | April 1, 2024 | March 31, 2029 | WRIGHT, KEVIN | reporter.nih.gov |
| Laminin protein therapy for the treatment of Laminin-alpha2 deficient congenital muscular dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2024 to 2025 | $778,704 | April 1, 2024 | March 31, 2029 | BURKIN, DEAN J. | reporter.nih.gov |
| The role of TGF beta pathway dysregulation in pathogenesis of collagen VI-related muscular dystrophy | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2024 | $666,024 | July 1, 2017 | June 30, 2025 | MOHASSEL, PAYAM | reporter.nih.gov |
| Identification of Genetic and Molecular Pathways in Congenital Rare Disorders Affecting the Brain and Muscle | NIH | National Institute of Neurological Disorders and Stroke | 2022 to 2023 | $653,240 | August 15, 2019 | January 31, 2025 | MANZINI, M. CHIARA | reporter.nih.gov |
| The role Akirin and Pannier interactions during myogenesis | NIH | National Institute of General Medical Sciences | 2022 to 2025 | $542,000 | April 15, 2022 | March 31, 2027 | NOWAK, SCOTT JAMES | reporter.nih.gov |
| Micro-laminin Gene Therapy for MDC1A | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 to 2022 | $370,986 | April 15, 2021 | March 31, 2024 | MARTIN, PAUL TAYLOR | reporter.nih.gov |
| Targeting Dystroglycanopathies using Pluripotent-derived Myogenic Progenitors | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2021 | $353,874 | May 10, 2017 | March 31, 2022 | PERLINGEIRO, RITA C. R. | reporter.nih.gov |
| Identification of genetic and molecular pathways in congenital rare disorders affecting the brain and muscle | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $328,586 | August 15, 2019 | July 31, 2022 | MANZINI, M. CHIARA | reporter.nih.gov |
| Curation of Muscular Dystrophy Genes | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2025 | $290,137 | September 18, 2025 | August 31, 2028 | WEIHL, CONRAD C | reporter.nih.gov |
| Abnormalities in postnatal brain development as a feature of congenital muscular dystrophies | NIH | National Institute of Neurological Disorders and Stroke | 2021 | $71,238 | December 15, 2020 | December 14, 2021 | COLOGNATO, HOLLY A | reporter.nih.gov |
| Micropatterned surfaces for modeling muscular dystrophy-associated cardiomyopathy | NIH | National Heart, Lung, and Blood Institute | 2021 to 2022 | $56,082 | August 1, 2020 | March 31, 2022 | FULLENKAMP, DOMINIC EDWARD | reporter.nih.gov |
| Identifying tissue-specific interactions to bridge mechanisms underlying muscle degeneration in Congenital Disorders of Glycosylation and Dystroglycanopathies | NIH | Eunice Kennedy Shriver National Institute of Child Health & Human Development | 2024 | $34,007 | December 1, 2024 | November 30, 2026 | IGNACZ, AMANDA COLLEEN | reporter.nih.gov |
| 2022 Congenital Muscle Disease Scientific Symposium | NIH | National Institute of Arthritis and Musculoskeletal and Skin Diseases | 2022 | $15,000 | July 11, 2022 | June 30, 2023 | DZIEWCZAPOLSKI, GUSTAVO | reporter.nih.gov |
Organizations
Funding by fiscal year
| Fiscal year | NIH awards | NIH amount | NSF awards | NSF amount |
|---|---|---|---|---|
| 2025 | 12 | $5,322,166 | 0 | $0 |
| 2024 | 10 | $3,827,273 | 0 | $0 |
| 2023 | 10 | $4,400,720 | 0 | $0 |
| 2022 | 10 | $2,336,354 | 0 | $0 |
| 2021 | 9 | $2,284,887 | 0 | $0 |
Open federal funding opportunities
From Grants.gov: notices that funded awards in this table, and open notices on the same agency and assistance listing.
Updated November 3, 2026. Read from NIH RePORTER ExPORTER and NSF Award Search. Published by NIH and NSF as U.S. government data. NIH awards are fiscal years 2021 to 2025 (NIH files published to 2026-07-09); NSF awards are fiscal years 2022 to 2026 (NSF files published to 2026-11-02). NIH amounts are the total cost of each fiscal year in the window; NSF amounts are the funds obligated in the window. Organizations are matched on the UEI. Open opportunities come from Grants.gov and match on agency and assistance listing number, and on the notice number NIH prints on an award. Free to reuse with credit to SpecStream under CC BY 4.0. Spot a wrong value? Write to [email protected] with the link to this page.