Data / Foundation grants / Spinal Muscular Atrophy Foundation
Spinal Muscular Atrophy Foundation: 11 grants to organizations, $1.5 million (tax year ended December 2024)
Spinal Muscular Atrophy Foundation, a private foundation in Jackson, WY, paid 11 grants to organizations totaling $1,491,789 in its tax year ended December 2024, according to its Form 990-PF filed with the IRS on November 17, 2025. The largest was $238,814 to John Hopkins University in Baltimore, MD for characterization of gene expression in motor neurons in sma.
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- EIN
- 010759380
- Based in
- Jackson, WY
- Assets
- $50,173,258
- Grants paid
- $1,491,789
- Tax year ended
- December 2024
Grants paid, tax year ended December 2024
From the Form 990-PF filed November 17, 2025, IRS object ID 202543219349104244. It reported $1,491,789 in grants paid; 11 grants to organizations are listed.
| Recipient | Location | Purpose | Cause | Amount | Source |
|---|---|---|---|---|---|
| John Hopkins University | Baltimore, MD | Characterization of gene expression in motor neurons in sma | $238,814 | apps.irs.gov | |
| Swiss Federal Technology Institute of Lausanne | SZ | Testing of mitochondrial modulators in sma models | $218,006 | apps.irs.gov | |
| Stanford University | Palo Alto, CA | Generation of spinal cord motor neurons from pluripotent cells | $207,000 | apps.irs.gov | |
| University of Florida | Gainesville, FL | Characterization of muscle environment in sma | $197,907 | apps.irs.gov | |
| Stanford University | Palo Alto, CA | Oversight on the stanford-sma foundation regenerative medicine program projects | $167,825 | apps.irs.gov | |
| University of Edinburgh | UK | Characterization of neuromuscular junctions in sma | $141,212 | apps.irs.gov | |
| Stanford University | Palo Alto, CA | Characterization of neuron-glial-immune cell interactions in sma | $117,494 | apps.irs.gov | |
| Boston Children's Hospital | Boston, MA | Testing therapeutics that promote neuron growth in sma models | $98,571 | apps.irs.gov | |
| Stanford University | Palo Alto, CA | Characterization of muscle in sma patients | $69,000 | apps.irs.gov | |
| Stanford University | Palo Alto, CA | Development of noninvasive gene editing methods | $33,460 | apps.irs.gov | |
| Muscular Distrophy Association | Chicago, IL | Support of muscle regeneration summit with key muscle experts | $2,500 | apps.irs.gov |
States funded
| Recipient state | Granted |
|---|---|
| California | $594,779 |
| Maryland | $238,814 |
| Florida | $197,907 |
| Massachusetts | $98,571 |
| Illinois | $2,500 |
Updated November 17, 2025. Read from IRS Form 990-PF e-file data. Public domain (U.S. government work). Grants are as each foundation reported them to the IRS on its Form 990-PF. Grants to individuals are left out. A grant has a cause only where the recipient's name and city match one organization in the IRS Business Master File, and the cause is that organization's NTEE major group. Free to reuse with credit to SpecStream under CC BY 4.0. Spot a wrong value? Write to [email protected] with the link to this page.